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University of Technology Sydney Law Research Series |
Last Updated: 16 May 2017
LEARNING FROM CROSS-BORDER REPRODUCTION
This is a pre-publication version appearing in (2017) Medical Law
Review
Emily Jackson[♦], Jenni Millbank, Isabel Karpin, Anita Stuhmcke[♥]
Abstract
Drawing upon the preliminary findings of an Australian empirical project on cross-border reproductive care (CBR), this article argues that regulators and policy-makers could learn from the experiences of those who travel overseas in order to access fertility treatment and surrogacy. It makes four principal observations. First, the distinction between so-called ‘altruistic’ and ‘commercial’ gamete donation and surrogacy is increasingly unsustainable and is not experienced as meaningful by many participants in CBR. Second, the status of the law in CBR is profoundly ambiguous; for participants it is often there and not there at the same time. Third, self-sourced information, from the internet and more specifically social media such as Facebook, is now the principal source of information and peer support for reproductive travellers. Fourth, and relatedly, domestic care providers are often sidestepped. If one of the goals of regulation is to minimise the risk of harm to participants, it is not clear that it is currently achieving this aim, and this article argues that any reforms will only work if they are more responsive to the reality of CBR.
I. INTRODUCTION
Over the past two decades, it has become increasingly common for people
to travel overseas in order to access medical procedures and
services, including
fertility treatment.[1] People travel
to receive fertility services for a broad range of ‘push’ and
‘pull’ reasons.[2] Some
travel to receive procedures that are illegal or unavailable to them at home;
others are in search of better care, shorter waiting
times, greater privacy or
lower costs.[3] The United States, for
example, is a destination for some reproductive travellers, including Europeans
and Australians seeking surrogacy
or sex selection. At the same time US citizens
have travelled to India and Mexico in order to access cheaper surrogacy
arrangements.[4]
‘Diasporic’ travellers might ‘return’ to their country
of origin in order to have their cultural or religious
needs
met,[5] or to access ethnically
matched donors.
Cross-border reproductive treatment takes place within a
rapidly changing legal environment. Thailand banned foreigners from accessing
surrogacy in 2015;[6] India restricted
surrogacy to heterosexual married couples in 2013 and is in the process of
implementing a ban on all foreigners,
except those of Indian
descent.[7] Nepal was briefly an
alternative destination before it too shut its doors to foreigners in
2015.[8] It is impossible to tell
how many people travel in order to access fertility services. In 2010, Shenfield
et al estimated that there
were about 24–30,000 cycles of cross border
fertility treatment within Europe each year, involving 11–14,000
patients.[9] There is, however, no
systematic collection of data, so the prevalence and outcomes of reproductive
travel are unknown.[10]
While
the picture of cross border reproductive care (CBR) is simultaneously incomplete
and extraordinarily complicated, one certainty
is that states can no longer
assume that their citizens will seek fertility treatment and services in local,
easily-regulated clinics.[11] Every
country therefore faces the question of what the appropriate regulatory
response, if any, should be to this dynamic and widespread
(but ultimately
unquantifiable) bypassing of domestic healthcare services and domestic
regulations. Our focus in this article is
on domestic responses to CBR, but it
is also worth noting that there is increasing interest in the development of
cross-national
minimum standards. These might take the form of a Hague
Convention on surrogacy, in order both to protect the interests of the surrogate
mother and to avoid the creation of ‘stateless and parentless’
children,[12] or it might simply
involve collaboration among members of the International Federation of Fertility
Societies in order ‘to
develop uniform clinical and safety
standards’.[13]
Research
emerging from the United Kingdom and Australia suggests a number of common
threads, which make them useful comparators when
developing responses to CBR. In
both the United Kingdom and Australia people who travel abroad for reproductive
treatment may have
multiple reasons for doing so, but as both countries provide
high quality IVF treatment (with varying degrees of State subsidy) and
can
broadly be characterised as liberal in their
access,[14] our residents may be
less likely to be motivated primarily by treatment exclusions or cost
considerations.
In the UK, in their qualitative study of 51 interviewees in
2009-10, Culley et al found that those utilising cross border treatment
were
motivated by avoiding long waiting lists; the prospect of higher success rates
abroad; the hope of receiving treatment in a
less stressful environment; and by
dissatisfaction with the treatment that they had received in the
UK.[15] In Australia and New Zealand
a survey study in 2014 of 137 respondents (105 from Australia and 32 from
New Zealand) by Rodino et
al identified unavailability of treatment, treatment
not permitted, long waiting lists for donor gametes and limited choice of donors
as the most common
motivations.[16]
In this article, we contribute to an emerging body of research into the
experiences of reproductive travellers as part of our qualitative
study
examining CBR. In this project we are interviewing reproductive travellers from
Australia, as well as regulators, agencies
and clinicians both within and
outside Australia, in order to better understand the motivations for, and
experiences of, as well
as the effects of CBR. At the time of writing, mid-way
through a four year project, we had undertaken 54 interviews with 55
interviewees,
of whom 28 had utilised cross border reproductive processes, as
well as 11 facilitators and four medical practitioners engaged in
cross border
treatment.[17] We are publishing
these tentative findings in order to contribute to the on-going development of a
body of more nuanced analysis
of CBR that explores both risks and benefits,
attending to the perspectives of those who undertake it.
The premise of this
qualitative study, and of our argument here, is that regulators, clinicians,
policy-makers and law-reformers can
and should learn from the lived experiences
of those who cross borders in search of reproductive treatments and services. We
suggest
that patients’[18]
subjective experiences of risk, care, and legality differ markedly from the
assumptions about patient behaviour that have tended
to inform regulation in
this area. We tease out this claim, and its implications for responsive
regulation, across four preliminary
observations.
First, the distinction
between so-called ‘altruistic’ and ‘commercial’ gamete
donation and surrogacy is
increasingly unsustainable in law and
policy.[19] Further, this division
of practices is not experienced as meaningful by many participants in CBR, and
is openly rejected by some.
Second, the status of the law in CBR is
profoundly ambiguous. Even countries with extra-territorial criminal
prohibitions against
commercial surrogacy in practice often facilitate these
prohibited arrangements through citizenship and parentage provisions. This
ambiguity builds an experience of law as both there and not-there for
reproductive travellers. In our interviews we have noticed
that some people
accessing CBR simultaneously acknowledge the presence of legal provisions (such
as prohibitions in the criminal
law; rules regarding legal parentage, or the
likely unenforceability of surrogacy or egg donation contracts), at the same
time as
regarding these as abstract technicalities. Time and again our
participants downplayed the significance of law, as compared with
‘real
life’, or a ‘well-trodden path’, in which others before them,
and they themselves, have returned home
with children despite the existence of
restrictive legal provisions, in Australia and the country of
treatment.
Third, self-sourced information, from the internet and more
specifically social media such as Facebook, is now the principal source
of
information and peer support for reproductive travellers. Clinics and agencies
have their own Facebook pages, and there are Facebook
groups for different
cohorts of reproductive travellers: gay dads, egg donors, egg recipients,
surrogate mothers and intended parents.
‘Personal’ recommendations
and anecdotal ‘evidence’ about the quality of care appear to matter
more to patients
than doctors or regulators might expect.
Fourthly, and
relatedly, domestic care providers are often sidestepped. Given that many
patients self-refer with the help of internet
forums and Facebook, reproductive
travellers may be bypassing what has conventionally been a crucial source of
information and support
when undergoing complicated, stressful and invasive
medical treatment, namely local healthcare professionals.
Drawing on these
observations we suggest that finding a way to ensure that as many reproductive
travellers as possible access accurate,
balanced information before they depart
in order to make an informed assessment of overseas (and domestic) treatment
options should
be an important, but by no means straightforward, regulatory
objective. We need to learn more about why some citizens of countries
that pride
themselves upon having among the safest and the best regulated fertility
services in the world are actively bypassing
those services, and seeking out
treatment in apparently less well-regulated environments, often on the basis of
Facebook recommendations.
We do not suggest that domestic law and policy
should uncritically reflect ‘consumer choice’ in CBR, or that a
reform
agenda should be moulded to the expectations of those who utilise CBR,
especially if there is clear evidence of harmful practices
or outcomes. However,
we do argue that the experiences of those who travel for reproduction offer
important insights that complicate
common assumptions about CBR. For instance,
as we shall show below, some women found the idea of altruistic surrogacy or egg
donation
to be more morally problematic than compensated surrogacy and
egg donation.
To inform a more nuanced approach to the provision and
regulation of fertility treatment we must attend to the subjective experience
of
risk, quality and care in CBR, especially when this involves what Angela
Campbell calls ‘morally ambiguous’ or even
‘ostensibly
self-injurious’ choices.[20]
In this paper we suggest that it is impossible to properly evaluate the role of
law in CBR without attending to its impact upon participants’
lived
experiences, and that, in the light of a dramatic mismatch between law’s
goals and reproductive travellers’ experiences
of law, there may be
grounds for some form of realignment.
II. ALTRUISTIC OR COMMERCIAL: AN UNTENABLE DISTINCTION?
In many countries, including the UK and Australia, a sharp distinction
between altruistic and commercial arrangements has moulded
the legal response to
surrogacy and assisted reproduction for the past 30
years.[21] In Australia, commercial
surrogacy is a criminal offence for all participants, as is trading in human
gametes.[22] In the United Kingdom,
professional involvement in commercial surrogacy is criminalised, although
surrogate mothers and intended
parents are
exempt.[23] Since 2011, egg donors
in the UK have been able to receive up to £750 per cycle of donation, to
include all expenses, an amount
which is not intended to incentivize donation,
but which is instead, in the words of the then Chair, Lisa Jardine, ‘a
level
of compensation which will not deter those interested in donation but will
retain donors already in the system, without attracting
those who are merely
financially
motivated’.[24]
An
assumption underpinning much of the reaction to CBR in the UK and Australia is
that travellers go to ‘commercial’ jurisdictions
in order to avoid,
directly or by implication, the constraints of altruistic regimes; that is to
access a more immediate or wider
range of reproductive contributors who are more
plentiful (and who may also be less powerful negotiators) because they are
motivated
primarily or solely by financial gain. We suggest that this flat
characterisation skirts over important question of payment to whom
and for what, in both domestic and cross-border arrangements.
A common
theme among our interviewees is a rejection of the assumption that altruistic
surrogacy is morally superior to commercial
surrogacy. For example Beth had
undergone a radical hysterectomy as part of her treatment for cervical cancer
and, after unsuccessful
treatment in Australia, travelled to California for an
arrangement involving an egg donor and a surrogate mother. Beth found the
assistance of the agency in California to be vital to the whole process. She was
strongly critical of the Australian system and did
not accept that altruistic
surrogacy was less coercive than the commercial arrangements available in
California:
Yes, but you’d have a bit of hinting going on, wouldn’t you? If
it’s altruistic here and it’s in-family there’s
a lot of
hinting; aunties are talking to sisters, friends are saying ‘would you do
it for them, what about them, why don’t
you help them’, or whatever.
In America she’s just receiving a whole stack of applications,
there’s no previous
connection. Undoubtedly the role of the agency.
Their role is paramount, is vital, because not only does their reputation rest
on this, they have to protect the surrogate before they protect the intended
parents, because if the surrogate doesn’t have
a good experience, the
surrogate’s going to tell other people. There are going to be other
surrogates that are wishing to
go through the process to be selected.
Surrogates just don’t fall out of trees. Even though you think in America
they’re
paying for them, surely they’ve got loads of women, oh no,
it’s only a certain breed of lady that does this. Then that
certain breed
of lady is culled down to about four per cent. So it’s not just a whole
line of ladies waiting around the block,
it’s just a very small amount of
certain special ladies.
The distinction between regimes, and practices,
characterised as altruistic and those characterised as commercial is contestable
and
ambiguous both within and across different jurisdictions. For example,
Australian policy makers categorise Canadian surrogacy practices
as
‘altruistic’, because under Canadian law the surrogate cannot be
paid more than her expenses. Nevertheless, Australians
travel to Canada for
surrogacy (and not, it appears, the other way around), and they do so in order
to access paid brokering services,
even though such services would be
criminalised as commercial if they were operating within Australia.
Incoherence is also present in Australia’s approach to the payment of
egg donors, brokers involved in egg procurement and agencies
who run egg
‘banks’. So for example, eggs imported into Australia from US-based
services such as the World Egg Bank involve
a cost of $20,000 USD to the patient
for six eggs, comprising a payment of approximately $3000 USD to the egg donor
and $17,000 in
fees to intermediaries (described as ‘administrative’
and ‘transport’
costs).[25] In comparison, one
US-based broker we interviewed, who matched donors and recipients and organised
treatment in eight overseas destinations,
reported that the egg providers in her
service were paid $1500 USD as a ‘price’, with $100 spending money
and $50 per
day meal allowance on top of their travel expenses, while an
additional ‘administrative fee’ of $4500 USD was charged
by her to
patients (leading to a total cost to patients of less than $10,000). Bizarrely,
the first of these examples is regarded
as altruistic donation under Australian
law, while the latter is not.[26]
There is also, as will be discussed below, an illogical and widening gulf
between the active domestic medical facilitation of overseas
(compensated) egg
donation and the prohibition of domestic medical involvement in overseas
(commercial) surrogacy.
In our CBR study we have found that the historical
stigma attached to the ‘commercialisation’ of reproductive
contributors
is not shared by intended parents. For many participants, the lack
of payment to the surrogate or egg donor in domestic arrangements
was believed
to be unfair to her, as she was then, effectively, the only volunteer surrounded
by a number of professional participants
– including doctors, counsellors
and lawyers – all of whom were acting for profit. Some altruistic
surrogacy arrangements
ended up with an overall cost to the parents that was
roughly similar to the cost of a commercial arrangement overseas. So, for
example,
Lachlan, an interviewee with two children born through surrogacy in
Australia, noted that the cost of their arrangements had been
about $80,000 for
the first child and $50,000 for the second child, all of which went ‘to
the medical and legal professions’
rather than to the women who had helped
them:
The whole debate in terms of commercial surrogacy arrangements, if it’s
ever spoken about as advocates against it, it’s
always the quotation from
someone in the legal or medical profession because they’re getting
sizeable rents. You almost expect
to pay double in terms of the process as
well...it would be cheaper for us to go to India, for argument’s sake,
than going
here in Australia... everybody gets paid in this, apart from the
women. ...Yes and [our surrogate] Veronica had an old fridge and
the seal
wasn’t working, I just wanted to go out and buy a new fridge for the
family. There was a decision then of okay, would
that be considered a material
item and will that be considered [commercial payment when we are] going to the
courts? So we made
a decision well no, we won’t say anything.....So
that’s a cause of frustration.
Like Lachlan, Lauren, another
interviewee involved in a surrogacy arrangement in Australia, expressed a desire
to pay her surrogate,
and an anxiety about the ‘fuzzy’ definition of
expenses in Australia:
I think also a con of the altruistic system in general is that a really sort
of fuzzy line of what can and can’t be considered
a surrogacy expense. So
you’re always sort of worrying like oh am I breaking the law by
reimbursing this. There’s no
real sort of set list of what you can and
can’t pay for and I think that causes anxiety for surrogates as well.
Lauren also expressed a real sense of discontent about not being able to
compensate her surrogate, saying:
[T]here’s such an inequality for giving. I find that for someone to
give their body for the sake of creating another family
is just — I
can’t think of any greater gesture and so to not be able to return that in
some way sort of makes me feel,
what’s the word, inadequate in a way I
guess. I’ll find other ways to be giving, giving with my heart, giving
with my
friendship and giving with my love. Yeah, but if I could I’d just
— I’d give everything but yep not allowed. I’d
really love to
see it compensated. I wouldn’t want to see it turn into a commercial
operation but I would love a token amount
just to sort of absorb some of those
costs that surrogates aren’t comfortable with sharing with their intended
parents but
also just to lighten the load on them a little bit. Maybe $10,000 or
$20,000 like not a huge amount of money just — not as
an incentive to do
it but just to kind of — sorry my brain’s just gone dead. Not to
attract people for commercial reasons
but more just to lighten the load on the
families a little bit. So I’d really love to see that happen
Lauren’s preference for modest compensation, which would not be
enough to ‘attract people for commercial reasons’
is consistent with
the findings from a recent UK survey of surrogates and intended parents, which
found that ‘the mean average
of £10,000-£15,000 represents
compensation, not
“payment”’.[27]
Indeed there is evidence that this level of compensatory payment is simply
‘waved through’ in the UK’s magistrates
courts (which deal
with parental orders for UK surrogacy), without any need for it to refer to
itemized expenses.[28]
For many
of our participants, being able to pay surrogates modest compensation was fairer
and hence more morally satisfactory for
them than asking another woman to carry
a pregnancy without receiving any compensation for her time and inconvenience.
Cybil’s three-year-old son was born with the help of traditional
surrogacy in Western Australia. Cybil explained that she would
have preferred to
be able to pay her child’s surrogate mother. Her central rationale was
that payment would create clearer
boundaries, in contrast to the current system
in which the definition of reasonable expenses is unclear:
Yeah, it would be much clearer for everyone what the boundaries are. I know
that because you can’t offer not only compensation
but even gifts, like
technically you can’t even give them a bunch of flowers.
Some
participants were also clear that they valued the service provision of some
commercial providers, not just to themselves, but
also to the surrogate or egg
donor. Gerry, who had used a surrogacy agency in Canada said:
I think I just really liked the way — I think we have covered this off
before as well, but the agency is very respectful to
the surrogate in what they
call the fourth trimester, meaning, dealing with her effectively and caring
— in a caring way about
the fact that — how’s she’s
going to feel post separation after the birth. I think for us, it’s
really important
to have a sense that we’re doing the right thing and that
we’re not exploiting anyone.
One of the Canadian agencies we
spoke to assigned a full time support worker to each surrogate and a different
employee to support
each set of intended parents. The agent, Sally, explained
that that these workers played an invaluable role in resolving issues and
ensuring that disputes did not arise in the course of the relationship between
the parties. In contrast, some of the intended parents
who undertook unpaid
surrogacy within Australia felt that, after the clinic’s initial
counselling session, they were ‘left
on their own’. For example,
Lachlan describes the limited service provided by the Australian clinic that he
and his wife attended:
Canberra was a funny situation where the hospital that runs the clinic, there
was one lady there involved and she only dealt with
surrogacy on Tuesday. So if
you called up on Monday she wouldn’t respond until the Tuesday. If you
sent an email on the Wednesday
you had to wait the whole week until the Tuesday.
As a result, it was very hard to get hold of her because there were a number of
parents obviously wanting to get stuff and only Tuesday. So that became in
itself — but you say to yourself okay, I need to
call her tomorrow, type
thing. So that had its own — there were intricacies.
While of
course not all offshore providers necessarily commit much, or any, of their
commercial fee into the level of service provision
offered by Sally’s
Canadian agency[29] (and many of our
participants undertook egg donation and surrogacy abroad with no preparatory or
follow up counselling), we draw
on this contrast between a Canadian agency and
an Australian clinic to illustrate that it is not the fee itself which
determines whether practices are fair and non-exploitative – yet the
legality of surrogacy arrangements are determined
solely by reference to this
factor. A more responsive approach for law would be to ask: what practices are
beneficial and how might
they be facilitated (and perhaps also paid for) by a
regime that seeks to avoid improper inducement or impaired consent?
In the
UK’s ‘altruistic only’ system, for example, it is an offence
for anyone other than the surrogate mother and
the intended parents to negotiate
a surrogacy arrangement ‘on a commercial basis’, and it is a
criminal offence for intended
parents, surrogates and agencies to advertise
their willingness to participate in or facilitate surrogacy. As a result, as
McFarlane
J explained in Re G (Surrogacy: Foreign
Domicile),[30] the role of
facilitating surrogacy arrangements has traditionally been left to ‘groups
of well-meaning amateurs’. If
the mischief to which the ban on commercial
involvement is directed is the prevention of exploitation, the evidence is by no
means
clear that this is best achieved by discouraging professional
agencies’ involvement in surrogacy. On the contrary, as Natalie
Gamble has
explained:
The offer of payment does not necessarily preclude an informed choice; and
nor does the absence of payment ensure it. A much more
sophisticated approach is
to require regulated intermediaries to ensure that surrogates and parents are
given good quality information
about the risks and offered counselling to
reflect on the long term commitment involved before they
proceed.[31]
III. EVASION, TOLERATION AND AMBIGUITY IN LAW
If prohibitions on commercial surrogacy can be readily avoided by buying
an airline ticket, with, in practice, few or no penalties
for doing so and
active facilitation of parenthood by the courts and immigration services, what
is the status of those prohibitions?
In the UK, the law has prevented the
development of commercial surrogacy brokers, but it does not treat intended
parents who engage
in commercial surrogacy as criminals. Australia’s
prohibitions on the payment of gamete providers and surrogates are stricter,
and
in addition three Australian states and territories criminalise participation in
commercial surrogacy even if it occurs elsewhere.
The National Health and
Medical Research Council’s guidelines, which apply to all fertility
practitioners in Australia, further
state that it is ‘ethically
unacceptable to undertake or facilitate surrogate pregnancy for commercial
purposes’.[32]
Yet prosecution, disciplinary or licensing action in response to breach or
evasion of these prohibitions has been extremely rare,
and uniformly
unsuccessful.[33]
Some of our
interviewees from Australian jurisdictions where criminal prohibitions on
commercial surrogacy have extra-territorial
effect took a calculated gamble.
Isaac and his partner Gordon entered into a surrogacy arrangement in Thailand.
They understood that
they were breaking the law but believed that because so
many other families had not been punished or detected that they too would
be
unaffected:
One is I knew that technically by the law of New South Wales, we were
breaking that law. [Another parent] kind of put my feelings
in that regard at
ease in saying “well, if they arrest you for it, they’re going to
arrest hundreds of other people who
have done exactly the same thing that
you’re thinking of doing”, which made me feel better about being
more open about
it.
Notably some interviewees felt that while their
participation in commercial surrogacy was ‘technically’ illegal, it
wasn’t
criminal in any real sense. Others who were more concerned about
breaking the law undertook a variety of evasion strategies: some
sought out
surrogacy in Canada on the basis that it too was seen as an
‘altruistic’ jurisdiction; others moved to a different
state, like
Victoria, from where it is not illegal to travel for commercial surrogacy; some
simply falsified documentation in order
to appear that they had done so.
Dian was born without a uterus and sought a surrogacy arrangement in the
USA. She and her husband Wayne were very concerned because
the NSW ban on
overseas commercial surrogacy was in place when they returned from the USA with
their daughter. At the time of the
interview a year later Wayne was still
concerned that they had acted against the law, but Dian was becoming less
anxious:
Well, we didn’t want to do something that broke the law. Both [our sets
of our] parents didn’t know anything about it.
[We] kept them from that;
because of that reason as well, we didn’t want to worry them.
Wayne’s brother — I don’t
know whether he’s currently a
lawyer, but he was a lawyer at one stage, and he knew what we were doing. We
used his address.
He was extremely worried for us, but supportive, like he
didn’t say ‘don’t do it’. I guess I didn’t
want to
implicate — I didn’t want to implicate other
people.
Participants also experienced the law of the treating country as
highly ambiguous. In some respects this is understandable, as some
of the
jurisdictions in which international commercial surrogacy have flourished in
recent years are precisely those with a lack
of clear regulation. However we
argue that this went further, to actually imbue all aspects of the CBR process
as one of law and
not-law, involving an active process of double-think. Harry, a
gay man who went to Thailand with his partner and undertook two surrogacy
arrangements simultaneously with embryos created from the same egg donor and
each man’s sperm, said:
I mean Thailand didn’t have specific laws at the time. We were
certainly aware that there [were] draft laws on the table, but
at the time they
didn’t have those laws. However through just common practice, we actually
felt that the laws were quite protective
of us, of doing surrogacy.
Here, Harry is speaking of then-current Thai laws, in which the
surrogate (and her husband, if any) were the legal parents of any
child born; a
male genetic parent not married to the mother could generally not apply for
custody before the child was seven years
old, and any form of payment for
surrogacy was unlawful. Harry nevertheless thought that these laws were
‘quite protective’
of him as an intended parent, who had no genetic
relationship to one of the children, in comparison with the ‘draft
laws’,
passed in haste in 2015, which expressly criminalised all paid
surrogacy, and limited unpaid surrogacy to domestic arrangements involving
relatives of the surrogate.
Similarly, intended parents spoke of feeling
‘protected’ by contracts which provided that surrogates were
obligated to
surrender babies to them, in contrast to domestic arrangements
where ‘she might change her mind and decide to keep it’.
Yet, when
pressed, they would also acknowledge that such a contract was not likely to be
enforceable. As Harry explained:
No, we never had a lawyer take us through contracts. So the contracts were,
you know, we went through the contracts with the agent
and they were in English
and in Thai but again, I don’t think there would be much to be gained by
going through that with a
lawyer because I’m not sure — we were
happy with what was actually written in the contract, but some of it I think
wouldn’t
actually be legally binding if it was actually tested in court
and things like that, because of the fact that it was quite a legal
grey area
...
I think you needed to — I think the important thing for intended
parents is to understand what environment they were operating
in, but I think
because there wasn’t really explicit laws to refer to, that’s why I
think engaging with lawyers either
here or there was less
useful.
Likewise Tom who undertook surrogacy as a single gay man in India
said of the contract he signed:
Look, I was following what people were saying about contracts and to get the
contract looked at ... I think some of the advice that
people have shared was it
costs a lot of money to have your contracts looked at and it’s not
actually legal or legally viable
in Australia anyway. There’s no real
— ... So I didn’t actually — then I decided not to seek legal
advice
because I just thought it was almost pointless.
Essentially
then, legal advice is ‘almost pointless’ for an unviable contract,
which nevertheless is capable of going
some way to protect the rights and
liabilities of the parties throughout the arrangement.
One of the
preconditions for the granting of a parental order to intended parents through
surrogacy in both the UK and Australia is
that no payment should have been made
‘other than expenses reasonably incurred’. In the UK, the courts
have the power
to retrospectively authorise payments made in excess of
reasonable expenses. Because the child’s welfare is the paramount
consideration
when deciding whether to make a parental order, the UK courts are
effectively presented with a fait accompli: if the child’s settled
home is with the intended parents, a parental order will invariably be in his or
her best interests.
Thus, UK courts routinely authorise payments made to the
surrogate mother, even when they vastly exceed any plausible
expenses.[34] At the same time, the
statutory prohibition on payments may discourage some intended parents,
concerned about having their financial
arrangements scrutinised, from applying
for parental orders. The legislation therefore fails to stop payments, while
failing to provide
legal certainty about what is and is not allowed, and also
potentially deterring the acquisition of legal parenthood.
In contrast, in
Australia there is no discretion in the surrogacy parentage transfer regimes
controlled by state and territory courts.
Thus intended parents in
‘commercial’ arrangements are not legal parents, and can never have
parentage transferred.[35] Excluded
from this process, parents can nevertheless approach the federal Family Court
seeking parental responsibility orders (a
lesser form of recognition than legal
parentage) and, in a handful of these cases, the Court has also
‘declared’ the
male genetic parent to have been a legal parent all
along. Perversely, this means that for some male genetic parents in commercial
surrogacy their legal parentage has been secured more readily than it has been
for intended parents in domestic unpaid
arrangements.[36]
To add to the confusion, other judges of the Court have refuted this approach as
a misreading of the legislation, leading to an as
yet unresolved judicial
lottery.[37]
In a similar vein,
in both the UK and Australia, as with Canada and many other
‘altruistic’
jurisdictions,[38] the State has
actively acquiesced in facilitating the acquisition of citizenship for children
born as a result of overseas commercial
surrogacy
arrangements.[39] This is the case
in Australia even when the intended parents are resident in a state in which
they are subject to extra-territorial
criminalisation. In a parallel vein,
potentially unlawful payments by Australian parents to egg providers abroad are
not examined
as part of State processes granting citizenship or parental
responsibility in surrogacy arrangements. Gabriel, a gay man who undertook
surrogacy in Mexico said:
it’s obvious the Australian government’s allowing it to happen.
They’re not stopping the kids getting their passports.
If they started
doing that then they’re really saying, ‘no you’re not allowed
to do it at all because it’s
illegal’. But the government’s
not doing that, they’re letting it happen.
In this way, as
discussed later, intended parents understood themselves as both parents and
not-legal parents under Australian law:
their children were granted passports
and in practice they could use their overseas birth certificates, at the same
time as those
birth certificates do not record parentage for the purposes of
Australian law and their parental relationship had not been legally
formalised.
If it is possible to establish a working parental relationship in the absence of
a parental order, many struggle to see
the point of going through yet more
expensive ‘red-tape’. Indeed some Australian facilitators, such as
Alec, actively
discouraged parents from doing so because, unlike the UK, the
result was not ‘guaranteed’:
If we had a system here where it was a guaranteed process and a simple process, of course I'd be recommending everybody get them, but 95 per cent .. [don’t] get them, because we get by without it. Why would we want to spend a year and a half in the court system and spend $30,000 on this stuff? It doesn’t make sense.
The practical consequence of people bypassing the formal transfer of
parenthood may be that the courts have to step in at a later
point to resolve
difficult questions of parenthood, which might arise as a result of parental
separation or death, for example.
Whether one characterises these actions as
facilitating a pluralistic ‘safety
valve’[40] or as out-and-out
hypocrisy,[41] there is at the very
least a mixed message being sent about the status of these prohibitions. In
practice, de facto tolerance of the evasion of reproductive travellers
may be inevitable; as one of Culley et al’s respondents put it:
‘what
are you going to do, confiscate their passports?’
[42]
IV. INTERNET-ASSISTED REPRODUCTION AND THE UBIQUITY OF FACEBOOK
There is considerable evidence that the internet is by far the most
important source of information for reproductive
travellers,[43] and that healthcare
professionals in their home country are very rarely people’s primary
source of information and
advice.[44] In the UK, Hanefeld at
al interviewed 77 outbound patients and found that most had identified a
specific clinic or provider through
facilitators in the UK or online
forums.[45] In Australia, Hammarberg
et al’s study found that those travelling abroad for surrogacy respondents
sourced most of their information
‘online and from other parents through
surrogacy’. Our preliminary findings strongly reflect this trend, with
patients
actively amassing information from a variety of internet sources. The
quality and accuracy of online material is decidedly
variable,[46] and much of it is
unverifiable, yet this process was uniformly referred to as
‘research’ by our participants.
Potential travellers visit
clinics’ websites, but more significantly, seek advice and information
from online forums, social
media, and several layers of intermediaries variously
described as facilitators, brokers, consultants and
agencies.[47] Many of these are run
by people who have previously undergone fertility treatment abroad, who go on to
set up businesses through
which they can share, and make a living from, their
personal experience and knowledge of overseas fertility services.
In our
study, potential reproductive travellers had sought peer-to-peer information,
advice and support from fellow members of internet
forums and Facebook groups.
This often involves users requesting information about other people’s
experiences at specific overseas’
clinics or agencies, which fellow
forum-users will answer.[48] As Tom
says:
Yeah, at the time Yahoo Groups were really popular... so I was accessing
those. They were really popular in terms of people communicating
and providing
stories and getting updated information and asking questions, in mostly a
respectful manner most of the time so it
was really good... Well, now I guess
the Facebook groups have taken over the Yahoo Groups.... Some of the Facebook
groups are country-specific,
so there’s one or two for Nepal, or there
used to be one for Thailand...
Once people have decided to travel
abroad for treatment, they often rely upon personal recommendations in order to
select a particular
clinic. In our CBR study Olivia chose a US-based clinic for
egg donation based upon the recommendation of a ‘real life’
friend:
Because obviously going to another country I had absolutely no idea. You
don’t know whether the websites are actually legitimate,
I mean there is
so much fraud online and the amount of money that you’re talking about
with doing IVF overseas. Even having
a Skype conversation or a telephone
conversation you’ve got no guarantee. So I felt I would not have gone
overseas unless
I knew someone who had been at that clinic.
In one
respect, Olivia’s experience is unusual: while all of our interviewees
had, like Olivia, relied upon personal recommendations,
most of these had been
from ‘cyber’ friends. Cheryl, who travelled to India for surrogacy
noted that ‘All of these
clinics, American, Indian, Greek, they’ve
all got slick websites and you — they all sound amazing’. Cheryl
said
that what ‘tipped the balance’ for her was a ‘very
honest’ forum, even though it was hosted by the clinic
itself:
I did an awful lot of research. The particular clinic that I ended up using
in India has a chat room. They’re very happy to
give you access to their
chat room. It’s for their clients and prospective clients. It’s a
very honest chat room. You
get a very, very honest account of the experiences
that lots and lots and lots of people had had using this clinic. That made me
particularly comfortable with using that clinic. ... And you could contact those
people through the chat room as well. You could
send them private messages, so
being able to message them and say ‘I’m from Australia as well and
I’ve got a question
about this that’ was something that made me
— well it tipped my decision in their favour.
The central role
played by informal online networks and patient testimonies highlights, as
Hanefeld et al put it, ‘the importance
of ‘soft’ versus
‘hard’ information to
patients’.[49] The information
that patients are seeking online thus appears to be qualitatively different from
what doctors and regulators might
expect. Success rates and professional
accreditations matter, but patients are often more interested in what treatment
will feel like: the attitude of staff, the clinic environment, the
‘gut feelings’ other patients had had about their treatment.
Whether
it feels safe to be treated somewhere is not the result of evaluating technical
data from the clinic or local regulator,
but comes instead from personal
recommendations and first person narratives, largely gathered
online.[50] As Leah, who undertook
egg donation in Greece said:
[Y]ou do your own research. You get on the websites and you get on the blogs
and all that sort of stuff and that provides you with
far more of an education,
be it right information or not — far more education and reassurance than
any doctor’s given
me; because you’re talking to other women that
have been there, done that...
Although the internet is the primary source
of ‘soft’ information about the experience of fertility treatment,
it is also
worth noting the growing popularity of fertility and surrogacy
‘fairs’ or ‘roadshows’, which are huge exhibitions
in
which visitors can gather information from regulated clinics and the local
regulator, while also meeting people from overseas
clinics and
‘alternative’ therapists. Discussions about one’s need for
fertility services have emerged from the
strict confidentiality of the
doctor-patient relationship to become instead a marketing opportunity for
private providers. But while
these ‘fairs’ provide clinics with the
chance to sell their services, potential patients also value the opportunity to
find out if they feel a ‘connection’ with the clinic staff and their
approach.
Social media websites like Facebook also play an ambiguous role as
sources of information and support. Patients might become ‘Facebook
friends’ with an overseas agent or clinic, and gain considerable
reassurance from the posts of other patients or clients. The
distinction between
peer support and viral marketing from commercial brokers in such a setting is
not always clear. In the context
of travel for cosmetic surgery, Holliday et al
have pointed out that, to agents, Facebook is ‘an important marketing
tool’,
whereas patients ‘did not recognise (or refused) the
‘marketing’ definition of agents’ Facebook pages and
saw them
instead as open forums for
discussion’.[51] The
familiarity of Facebook allows it to be both a source of peer support and
authentic advice (from the point of view of patients),
and a staggeringly
successful (because invisible) advertising mechanism for agents.
There were
also instances where Facebook was used by intended parents to breach the privacy
of egg donors or surrogates, for example
to identify and approach these women
privately, or to seek and store information about them without permission. Umar
and Gabriel
were at the beginning of a surrogacy and egg donor arrangement in
Mexico. Although egg donation is anonymous in Mexico, Umar had
found their egg
donor’s Facebook profile because the clinic had given them the egg
donor’s name, without her knowledge.
Gabriel said:
Yeah, Umar has already cut out the pictures and cropped them. [Laughs] So yes
we will tell the child who they are. Like I said we’ll
probably inform the
egg donor or just message her on Facebook to say thank you and this is what
you’ve done for us. We want
to keep in touch somehow if you’re happy
to. But I guess that’s her call. But yeah, we’re more than happy to
do
that.
One response to the issues raised by overseas travel is to try
to educate people about the implications of undertaking CBR, by providing
information about clinical standards of care and the legal status of children
born from such arrangements. Counsellors and patient
support group
representatives interviewed by Culley et al in the UK, for example, thought the
only feasible response to reproductive
travel is to educate people, and ensure
that ‘they go into it with their eyes open and fully aware of the
implications’.[52]
Yet it
is hard to intervene in order to provide high quality information when people
self-refer to overseas clinics, on the basis
of Facebook recommendations. In the
UK, the HFEA has a page on its website entitled: ‘Considering fertility
treatment abroad:
issues and
risks’.[53] This politely
suggests a number of issues that people should ‘take into
consideration’, and advises people only to select
clinics with a
‘proven record on quality and standards’. There is, of course, no
guarantee that anyone contemplating
treatment outside the UK will read this
page, or follow its advice. In the Australian system with seven jurisdictions
and only two
official regulators, VARTA and the WA Reproductive Technology
Council, official information is even less widely available than in
the UK,
leaving Australians even less able to access accurate and reliable
advice.[54]
There is also a
mismatch between the view that healthcare professionals have ‘a key role
to play in ‘educating’
people about possible
risks’,[55] and the fact that
healthcare professionals are seldom the first port of call for information. If
people seek out information via
Google, Facebook, and internet chatrooms, there
may be little opportunity for clinicians to educate them about risks and
potential
pitfalls, a problem which is, as we see in the following section,
exacerbated by domestic laws which criminalise CBR, and hence deter
patients
from incriminating themselves in front of healthcare professionals.
V. THE ROLE OF DOMESTIC MEDICAL PRACTICE
The reordering of sources of information about fertility treatment
– from the medical profession to the internet – is
significant. It
suggests that patients are increasingly willing to bypass local healthcare
professionals in order to ‘take
matters into their own hands’. Even
if doctors are still trusted sources of information, there are other factors
which make
the internet an attractive source of information. When people are
seeking out information about treatments that may be unlawful at
home, or which
are stigmatised, the anonymity of the internet may be particularly appealing.
Restrictive legal provisions then actively
contribute to the bypassing of
medical professionals, concerned about their professional registration, as a
source of advice and
support.[56]
Shenfield et al note
in the ESHRE Good Practice Guide to Cross Border Reproductive Care that,
‘[c]ollaboration between the home
practitioner and the receiving center
offers the best chance of optimal care for the cross border patient’, but
add that this
‘may pose a problem ... where it is forbidden for doctors to
give information about alternatives that are not legal in the
country of
residence of the patient’.[57]
Indeed, laws which inhibit doctors from offering advice and assistance to
patients who are contemplating fertility treatment overseas
create a
professional conflict of interest in which doctors must choose between making
the care of their patient their first concern,
which would militate in favour of
providing advice and support, and not being seen to endorse or support illegal
behaviour, which
might instead militate in favour of leaving their patients to
their own devices
In Hammarberg et al’s survey study of Australians
travelling abroad for surrogacy, fewer than half of the 249 intended parents
who
responded had sought information from Australian IVF professionals — and
of those who did, around one-third reported a
negative
reaction.[58] This was reflected by
our interviewees. Cheryl said:
the main IVF doctor that I saw here in Sydney was very against offshore
surrogacy. I mentioned it to her just to get her idea and
she said ‘oh
that’s terrible. These are women that are terribly exploited and
you’ll go over there and you’ll
get a disease and you’ll be in
some terrible baby factory and what not’. Anyway, she said those things
and then I just
shut down that dialogue with her.
Some reported that
fertility doctors were unwilling to provide any form of information at all.
Dian, for instance, said:
Then [my partner] Wayne mentioned the word — the phrase ‘commercial surrogacy’. At that point Dr C said ‘no’. He just doesn’t want to know anything about it. He said don’t talk to me about that. It’s illegal, it’s — basically, the door was shut at that point here in Australia.
Concern about breaching a broadly-worded and unclear ethical prohibition
on ‘facilitating’ commercial
surrogacy[59] has prevented
fertility experts in Australia from engaging in even basic information-giving to
their patients, such as what is involved
in safe egg stimulation and embryo
transfer protocols, or the risks of departing from these protocols. It has also
prevented the
provision of basic fertility testing or preparatory care (such as
checking hormone levels, ovarian reserve, or sperm counts) for
patients who are
planning to undertake treatment abroad. For Dian this meant that she travelled
to India twice and underwent egg
retrieval, despite the fact that a simple
hormone test could have told her in advance that IVF using her own eggs would be
unlikely
to work.
So I got there by myself. The second or third day, while I — maybe the second day — after arriving in New Delhi I had a consultation with Dr I (India). They had done a blood test. She said that my [hormone] level was too high; too high or too low, I can’t remember, but as far as she’s concerned it would just be a complete waste of time to do an IVF treatment on me.
So I was quite devastated, but then she said that we should just go ahead
with an egg donor. At this stage the whole [issue of an]
egg donor had not even
cropped up. [Wayne] wasn’t there, and she wanted me to make the decision
right there and then.
Both clinically and emotionally, we suggest that
this was an adverse experience that could have been avoided if Dian had
undergone
basic preliminary investigations and preparatory care at home, before
travelling to India. Professionals within Australia have also
expressed the
concern that media coverage of cross border surrogacy, coupled with difficulties
in accessing frank advice from domestic
healthcare professionals once commercial
surrogacy is mentioned, has meant that some women are travelling abroad for
surrogacy as
a ‘fertility cure’, when they are, in fact, capable of
carrying a pregnancy.[60]
In
contrast to surrogacy, the Australian prohibitions on commercial trading in
gametes are far more specifically worded, criminalising
only the giving and
receipt of valuable consideration, rather than potentially implicating anyone
involved in ‘facilitating’
the practice. This has meant that some
fertility doctors are willing to recommend overseas egg donation and we
found that some even facilitate shared care, with the provision of scans and
tests
domestically before the woman travels, as well as follow up care. Thus, if
Dian had told her fertility doctor that she was travelling
to receive paid egg
donation rather than to pursue commercial surrogacy, she would be likely have
received domestic medical assistance
and advice. In a parallel vein, general
practitioners (who are not covered by the same ethical guidelines as fertility
specialists)
were reported by our interviewees to be to be assisting patients
with blood and semen tests in preparation for overseas surrogacy,
as well as
with prescription medications and blood tests in advance and pregnancy tests
post-travel for those receiving egg donation
abroad.
After years of
unsuccessful IVF in Australia, Leah travelled to Greece to undergo IVF and egg
donation. She explained that her GP
in Australia was helping her:
So how we coordinate it is that he tells me what I need. He writes it down
for me. I take it to my GP who’s fully aware of my
journey. ...so I just
have to make sure that he’s written down for me the correct spelling of
the medication that I need, what
it’s for. Then I just tell him a little
bit about the background to why we’re doing it and then he’ll write
me
an Australian script for it, so that’s how we’re coordinating it
at the moment.
The implications of this finding need further exploration,
but at a minimum suggest that access to local medical care and advice for
reproductive travellers is often filtered through general practitioners rather
than IVF clinicians, and is more effectively obtained
for Australian women who
are seeking egg donation compared to those seeking surrogacy.
VI. CONCLUSION: LEARNING LESSONS FROM THE EXPERIENCE OF CROSS-BORDER REPRODUCTIVE TREATMENT
It would be possible to regard reproductive travel as an aberration,
relied upon in extremis by people who are prevented, either by law or de
facto, from accessing reproductive services at home. In response to the
increasing
numbers of people travelling for reproductive purposes, enabling more
people to access local fertility services might therefore be
a plausible and
laudable regulatory objective.[61]
But while we would support measures to improve access to services, not least
because these might also meet the needs of those who
cannot afford to travel, we
would like to suggest that we should also be interested in what local fertility
providers and regulators
can learn from the experiences of reproductive
travellers.
As discussed in this article, our preliminary fieldwork has
thrown up four themes: that the legal distinction between altruistic’
and
‘commercial’ gamete donation and surrogacy is increasingly
unsustainable; that role of the law in cross-border reproduction
is profoundly
ambiguous; that Facebook is now the principal source of information and peer
support for reproductive travellers and
lastly, that domestic care providers are
often sidestepped. Each theme suggests that the cross-border reproductive
traveller does
not conform to regulators’ assumptions about patient
behaviour.
An underlying regulatory assumption is often that treatment at
home is ‘better’ than the international alternatives. Implicit
here
is the premise that the law will best protect patients through discouraging
international travel. Here, the patient experience
diverges. It is clear that
patients paying for treatment overseas feel as though they are more in control
of their treatment, and
that, in contrast to their experience of domestic
fertility services, they do not have to be grateful for what they receive.
Indeed,
in many of our interviews patients have praised the standard of care
they received overseas, considering it superior to that available
at home.
Opting out of local, regulated services is not necessarily always an unwelcome
last resort then, but may have positive advantages
for some patients. If this is
the case, we should be interested in listening to what patients say is
‘better’ about treatment
overseas, rather than just dismissing their
accounts as wishful thinking.
Overseas clinics may offer more support and
more contact time with clinicians and nursing
staff,[62] as well as a greater
choice of donors or surrogate mothers. Overseas clinics also make excellent use
of social media to contact patients
and to facilitate a high quality ‘care
experience’. Nicky Hudson and Lorraine Culley, for example, found that
treatment
overseas gave their interviewees ‘active involvement in deciding
on treatment protocols, choice about donors, control over
the timing of
treatment and good access to the clinician leading their
care’.[63]
We should be
interested in this apparent disjunction between what matters most to would-be
parents and what matters most to doctors,
regulators and legislators. In Van
Hoof et al’s study of internet forums, in which Dutch patients shared
their experiences
of having received IVF treatment in Belgium, ‘Respect
for the person behind the patient’ was identified as the main reason
for
the patients’ belief that the quality of care was higher in
Belgium.[64] Van Hoof et al comment
that ‘patient centred care is generally seen as a dimension of care that
has nothing to do with effectiveness
and efficiency’, whereas forum users
considered that the ‘central position of the patient [was] key for every
dimension
of good quality of
care’.[65] This is a revealing
illustration of the gap between the normal markers for success, as judged
objectively, and the marker of high-quality
care for patients, in which
patient-centred care is not just a desirable extra, but is central to every
aspect of what matters to
them. This is borne out by several of the intending
parents we interviewed. For example. Rosalind, who travelled to Greece to use
donated eggs observed:
We’ve spent nearly 60,000 dollars in Australia and not one of my
doctors have called and said, hey how are you or let’s
do this now or
anything like that....So that’s why we chose him because he just took this
real personal approach with us and
it was him that was in contact with us.
Clinicians, regulators and politicians have tended to assume that
patients choose clinics on the basis of their success rates and
the costs of
treatment. Anecdotal first-person accounts of what it was ‘like’ to
be treated there are treated with scepticism
by policy makers because, by
definition, anecdotal ‘evidence’ is not evidence at all. But while
it may not be statistically
significant, in practice, the anecdotal clearly
matters to patients.[66] Personal
connections matter too. Patients want to receive treatment from caring
clinicians, and they want to feel a ‘connection’
with their donor or
surrogate. In our interviews, we note how frequently the language of intimate
relationships is invoked in relation
to donors and surrogates. Clinicians might
assume that patients are principally interested in the health and screening
results of
potential donors and/or surrogates, whereas patients may be looking
for an emotional bond with them. The most striking example of
this from our CBR
study was an intended mother who explained that she and her partner had
‘fallen in love’ with an egg
donor, and that, for them, this trumped
the discovery that she was a carrier of the Tay Sachs
gene.[67]
A gap between what
matters to experts and what matters to patients is also evident in relation to
the law, including but not limited
to criminal prohibitions, citizenship and the
rules of legal parentage. For example, in our study, it is striking how few
intended
parents of children born through surrogacy had sought legal
formalisation of their relationship. Tom, who had undertaken surrogacy
in India
said:
I’m not going to the Family Court [to seek parental responsibility].
I’m fine with [the Indian birth certificate] as
being a formal document.
Because my name is on it I feel that gives me the parental rights that I need
even though legally I know I’m not actually the parent in
Australia. That’s the weird thing is that in India I’m the
legal parent and the surrogate has no parental rights and I come back
to
Australia and I don’t have any parental rights but the surrogate has got
all the parental rights, and she’s not even
actually living in the
country. So that’s a little bit bizarre. (emphasis added)
Many
interviewees appeared unconcerned about, or actively avoided knowing about the
risks to which their family was exposed as a result
of their lack of legal
parentage. What mattered instead was the lived experience of the practicalities
of new parenthood: being able
to get back into Australia, obtain a Medicare card
to access medical treatment for the child, and later to enrol him or her in
school.
This was particularly the case for those whose names appeared on the
foreign-issued birth certificate, who had encountered a a
‘no-questions-asked’
response from authorities. Charlotte, a parent
through surrogacy and egg donation in the US, described her decision not to seek
legal
advice as ‘low profile’: ‘I never really went into it.
I just assumed everything would be fine because I’m
on their birth
certificate’. In our interviews, it was common for genetic and non-genetic
parents to take such a view, relying
upon a document that they acknowledge, when
pushed, would not be likely to stand up to challenge. Like the unenforced or
ambiguous
laws of the treating country, and the ‘blind-eye’ approach
of domestic regulators, the birth certificate both is, and
is not, ‘legal
protection’.
We suggest that any attempt to further reform or refine
laws relating to CBR must attend to the subjective and lived experience of
law,
which like the personal experience of treatment, may stand in contradiction to
policy maker’s understandings of participants’
motivations or of
law’s effect upon behaviour. These experiences can usefully be explored to
complicate, for example, the dominant
assumption that payment in reproductive
endeavours is exploitative and inevitably impairs informed consent. Our
interviews explore
both cross border compensated surrogacy and egg donation and
domestic uncompensated arrangements. Though we are still at the beginning
of our
work, it is already clear that the picture is far more complex than might have
been expected, both morally and legally. Indeed
as this preliminary snapshot
from our interviews has shown, some participants chose compensated arrangements
precisely because they
considered an uncompensated arrangement to be ethically
questionable.
Perhaps more importantly, our research has begun to
demonstrate that the incentive of legal parentage under Australian law, or
threat
of its denial, will not drive intended parents away from paid surrogacy
or egg donation. The law, as it currently stands, works in
obstructive and
confounding ways that push people outside its reach or encourage them to ignore
its limits and this is ultimately
counter-productive and likely to cause harm to
the participants and their future children. There is a still a great deal to
learn
about cross-border reproductive treatment. Large-scale bypassing of
domestic fertility services is a relatively new phenomenon and
we have no
reliable way of calculating its prevalence and outcomes. In order to ensure
that the law is capable of minimising the
risk of harm to all participants, we
argue that it is necessary to learn from the experience of those
undertaking cross-border reproductive treatment, at and outside the limits of
the law.
[♦] Professor of Law,
LSE.
[♥] Professors of Law,
UTS. This research was funded by Australian Research Council Discovery grant
15010157. Our thanks to the study
participants, and to the reviewers of this
journal.
[1] J Connell, ‘Contemporary medical tourism: Conceptualisation, culture and commodification’ (2013) 34 Tourism Management 1. Connell refers to this as ‘reverse globalisation’, however, some view it as the latest form of colonisation.
[2] MC Inhorn and ZB Gürtin,
‘Cross-border reproductive care: a future research agenda’ (2011) 23
Reproductive BioMedicine Online
665.
[3] W Van Hoof, V Provoost,
and G Pennings ‘Reflections of Dutch patients on IVF treatment in Belgium:
a qualitative analysis of
internet forums’ (2013) 28 Human
Reproduction 1013; H Naraindas and C Bastos, ‘Healing holidays?
Itinerant patients, therapeutic locales and the quest for health’
(2011)
18 Anthropology & Medicine
1.
[4] SL Crockin, ‘Legal
perspectives on cross-border reproductive care’ (2011) 23 Reproductive
Biomedicine Online 811.
[5] J
Hanefeld, R Smith, D Horsfall and N Lunt, ‘What Do We Know About Medical
Tourism? A Review of the Literature with Discussion
of its Implications for the
UK National Health Service as an Example of a Public Health Care System’
(2014) 21 Journal of Travel Medicine
410.
[6] Protection of Children
Born from Assisted Reproductive Technologies Act 2015.
[7] S Cousins, ‘Only
married heterosexual Indian couples will be allowed to use surrogate mothers
under proposed new law’
(2016) 354 British Medical Journal
i4669.
[8] R Abrams, ‘Nepal Bans
Surrogacy, Leaving Couples With Few Low-Cost Options’ New York Times, May
2 2016.
[9] F Shenfield, J de Mouzon, G
Pennings, AP Ferraretti, A Nyboe-Andersen, G de Wert, V Goossens and the ESHRE
Taskforce on Cross Border
Reproductive Care ‘Cross border reproductive
care in six European countries’ (2010) 25 Human Reproduction 1361,
5.
[10] K Nygren, D Adamson, F
Zegers-Hochschild and J de Mouzon ‘Cross-border fertility
care—International Committee Monitoring
Assisted Reproductive Technologies
global survey: 2006 data and estimates’ (2010) 94 Fertility and
Sterility e4.
[11] This may
not even be possible as only 48 out of 191 member States of the World Health
Organization have IVF facilities. See further
AM Whittaker, ‘Cross-border
assisted reproduction care in Asia: Implications for access, equity and
regulations’ (2011)
19(37) Reproductive Health Matters 107, 109
citing M Inborn Right to assisted reproductive technology: overcoming
infertility in low-resource countries’ (2009)
106 International Journal
of Gynecology and Obstetrics
172.
[12] Hague Conference on
Private International Law The Desirability and Feasibility of Further Work on
the Parentage/Surrogacy Project (HCCH, 2014). See also the Council of
Europe’s Committee on Social Affairs, Health and Sustainable Development,
Children’s rights related to surrogacy (Council of Europe,
2016).
[13] International
Federation of Fertility Societies, Policy Statement 2: Cross Border
Treatment (IFFS, 2010).
[14]
Australian states have different approaches to ART and surrogacy. Gay male
couples continue to be formally excluded from IVF treatment
for surrogacy in SA,
Tasmania and WA. In Everingham et al’s study of 249 intended parents
seeking surrogacy overseas (of whom
around half were gay men), domestic legal
restrictions were a major ‘push’ factor: SG Everingham, MA
Stafford-Bell and
K Hammarberg, ‘Australians’ use of
Surrogacy’ (2014) 201(5) Medical Journal of Australia, 270. See
also J Millbank, ‘Responsive regulation of cross-border assisted
reproduction’ (2015) 23 Journal of Law and Medicine 346.
[15] L Culley N Hudson, F
Rapport, E Blyth, W Norton and AA Pacey ‘Crossing borders for fertility
treatment: motivations, destinations
and outcomes of UK fertility
travellers’ (2011) 26 Human Reproduction 2373, 2379-80; AM Whittaker,
Thai in Vitro: Gender, Culture and Assisted Reproduction (Berghahn Books
2015).
[16] I Rodino, S Goedeke
and S Nowoweiski ‘Motivations and Experiences of Patients Seeking
Cross-Border Reproductive Care: the Australian
and New Zealand Context’
(2014) 102 Fertility and Sterility 1422,
1425.
[17]. Pseudonyms are used
for all interviewees. The study utilised a multi-method recruitment process,
using both clinical avenues and
broader advertising to the public. Volunteers
were invited to participate through either engaging in face-to-face or phone
interviews
and were also asked to complete an optional demographic survey either
online or by hand. The inclusion criteria were that participants
currently or
previously engaged in surrogacy or egg donation or were service providers in
CBR. Interviews were semi structured and
duration varied between 30 minutes to
90 minutes, with most lasting around one hour. Qualitative data was subject to
thematic analysis.
Each member of the research team undertook multiple readings
of interview transcripts throughout the data collection period and discussed
emergent themes in depth. Identified themes were subject to comparative analysis
among the entire research team to ensure uniformity
of interpretation. Approval
to conduct this research was obtained through the University of Technology
Sydney Human Research Ethics
Committee: UTS HREC Reference Number 2015000094.
[18] We acknowledge that much of
the language in use in this field is loaded, and often highly contested. In
using ‘patient’
we acknowledge that many but not all travellers are,
in fact, patients. While a woman receiving donor eggs for her own pregnancy
attempt, or undergoing egg retrieval for a surrogacy attempt, undertakes IVF
treatment as a patient, her male partner – even
if he travels with her and
contributes sperm – does not undergo a physical treatment process in the
same way; likewise gay
men travelling for surrogacy could be characterised as
service users more than patients in comparison to the women who undergo IVF
treatment as egg donors and surrogates. Notably reproductive contributors are
rarely spoken of, and arguably in some instances not
properly regarded by
medical professionals, as patients. The use of ‘donor’ and
‘donation’ is also contested
when open forms of payment are
involved; however we continue to use the terms because we do not accept the
altruistic/commercial
binary and in acknowledgement that participants may still
experience the contribution as an act of sacrifice or ‘gift’
whether
or not payment is provided.
[19]
See A Stuhmcke, ‘The regulation of commercial surrogacy: The wrong answers
to the wrong questions’ (2015) 23 Journal of Law and Medicine
333.
[20] A Campbell Sister
Wives, Surrogates and Sex Workers (Routledge 2013), 47. See especially
Campbell’s arguments for an empirically informed juridical feminist
analysis of choice.
[21] A
Stuhmcke, ‘The regulation of commercial surrogacy: The wrong answers to
the wrong questions’ (2015) 23 Journal of Law and Medicine
333.
[22] I Karpin and J
Millbank, ‘Assisted Reproduction and Surrogacy in Australia’ in J
Eekelaar (ed), Routledge Handbook of Family Law and Policy, Routledge
2014.
[23] A Campbell Sister
Wives, Surrogates and Sex Workers (Routledge 2013), 112-118; A Stuhmcke,
‘New wine in old bottles and old wine in new bottles: The judicial
response to international
commercial surrogacy in the United Kingdom and
Australia’ in K Horsey (ed), Revisiting the Regulation of Human
Fertilisation and Embryology (Routledge 2015) 200.
[24] HFEA Press Release, HFEA agrees new policies to improve sperm and egg donation services, 19 October 2011.
[25] This does not include the
actual cost of IVF treatment for the recipient, just the cost of provision of
the gametes themselves.
[26]
Research Involving Human Embryos Act 2002, (Cth) s. 20. Note that the Victoria
regulator sought legal advice before granting approval for importation of eggs
from the World Egg Bank into
Victoria, but it is not publically available:
VARTA, Annual Report 2013 (2014), 15. Likewise the recent facilitation of travel
for
South African women into Australia as egg providers has been crafted around
what is arguably a façade of ‘reasonable
expense’: that is,
the expense is both inflated and justified by the travel, which is the implicit
inducement to egg donation.
The simple payment of a comparable amount to the
woman to stay and home and contribute eggs would likely be characterised as
commercial.
See ‘IVF Treatment: South African Agency Flies Egg Donors to
Australia’ Sydney Morning Herald (Sydney, 8 February
2016).
[27] K Horsey et al,
Surrogacy in the UK: Myth busting and Reform (Surrogacy UK, 2015), para
5.1.
[28] N Gamble, ‘A
Better framework for United Kingdom Surrogacy’ in S Golombok et al (eds)
Regulating Reproductive Donation. (Cambridge UP, 2016)
126-139.
[29] Indeed two
interviewees reported overseas arrangements in which they had paid significant
sums up front and operators simply ‘folded’
and kept the money
without delivering any service.
[30] [2007] EWHC 2814
(Fam).
[31] N Gamble note 28
above.
[32] The National Health
and Medical Research Council, Ethical Guidelines on the Use of Assisted
Reproductive Technology in Clinical Practice and Research (2007) (NHMRC
Ethical Guidelines) provides, under the heading, ‘Do not undertake or
facilitate commercial surrogacy’:
It is ethically unacceptable to undertake or facilitate surrogate pregnancy
for commercial purposes. Clinics must not undertake or
facilitate commercial
surrogacy arrangements
[13.1]
[33] J Millbank,
‘The New Surrogacy Parentage Laws In Australia: Cautious Regulation or
‘25 Brick Walls’’ [2011] MelbULawRw 5; (2011) 35 Melbourne University Law
Review 165. Note also that a major Australian clinic set up an egg donation
arm which initially offered $5000 flat sums for egg donation on its
website in
2015. The figure was later removed but there does not appear to have been any
other action taken.
[34] See, for
example, Re L (A Minor) [2010] EWHC 3146 (Fam), Re P-M [2013] EWHC
2328 (Fam).
[35] See Jenni
Millbank, ‘The New Surrogacy Parentage Laws in Australia: Cautious
Regulation or ‘25 Brick Walls’? [2011] MelbULawRw 5; (2011) 35 Melbourne University
Law Review 165
[36] See Jenni
Millbank, ‘Resolving the Dilemma of Legal Parentage for Australians
Engaged in International Surrogacy’ (2013)
27 Australian Journal of
Family Law 135
[37] See
Family Law Council, Report on Parentage and the Family Law Act
(2014).
[38] See Millbank above
note 34; K Lozanski, ‘Transnational surrogacy: Canada’s
contradictions’ (2015) 124 Social Science & Medicine
383.
[39] Until recently, France
was an outlier, in that the French authorities simply refused to recognise
intended parents as the parents
of children conceived through surrogacy, but
this has refusal has been challenged successfully before the the Grand Chamber
of the
European Court of Human Rights (in Mennesson v France (Application
no. 65192/11) and Labassee v France (Application no. 65941/11) 26
June 2014), on the grounds that the child’s right to respect for her
family life requires recognition
of her relationship with her intending and also
biological parent.
[40] See e.g.
G Pennings, ‘Legal harmonization and reproductive tourism in Europe’
(2004) 19 Human Reproduction 2689.
[41] K Lozanski, ‘Transnational surrogacy: Canada’s contradictions’ (2015) 124 Social Science & Medicine 383.
[42] L Culley N Hudson, E Blyth, W Norton, A Pacey and F Rapport, ‘‘What are you going to do, confiscate their passports?’ Professional perspectives on cross-border reproductive travel’ (2013) 31 Journal of Reproductive and Infant Psychology 46, 52.
[43] E Blyth, ‘Fertility patients’ experiences of cross-border reproductive care’ (2010) 94 Fertility and Sterility e1, e121; W Van Hoof, G Pennings and P De Sutter, ‘Cross-border reproductive care for law evasion: should physicians be allowed to help infertility patients evade the law of their own country?’ (2016) European Journal of Obstetrics & Gynecology and Reproductive Biology 101.
[44] See further F Shenfield, J
de Mouzon, G Pennings, AP Ferraretti, A Nyboe-Andersen, G de Wert, V Goossens
and the ESHRE Taskforce
on Cross Border Reproductive Care, ‘Cross border
reproductive care in six European countries’ (2010) 25 Human
Reproduction 1361.
[45] J
Hanefeld, N Lunt, R Smith and D Horsfall, ‘Why do medical tourists travel
to where they do? The role of networks in determining
medical travel’
(2015) 124 Social Science and Medicine 356,
360.
[46] E Blyth
‘Fertility patients’ experiences of cross-border reproductive
care’ (2010) 94 Fertility and Sterility e11, e14.
[47] J Snyder, VA Crooks, K Adams, P Kingsbury and R Johnston ‘The ‘patient’s physician one-step removed’: the evolving roles of medical tourism facilitators’ (2011) 37 Journal of Medical Ethics 530.
[48] Indeed, TripAdvisor-type
websites are starting to emerge to enable consumers to compare fertility
services and rank them according
to different criteria, for example on
fertility.treatmentabroad.com, it is possible to search and compare
different fertility treatments from clinics in a long list of countries (from
Albania to Vietnam),
with star-rankings, patient-reviews, and links to enquiry
forms and clinic websites.
[49]
J Hanefeld, N Lunt, R Smith and D Horsfall, ‘Why do medical tourists
travel to where they do? The role of networks in determining
medical
travel’ (2015) 124 Social Science and Medicine 356,
362.
[50] W Van Hoof, V Provoost,
and G Pennings ‘Reflections of Dutch patients on IVF treatment in Belgium:
a qualitative analysis of
internet forums’ (2013) 28 Human
Reproduction 1013; JG Payne ‘Reproduction in transition:
cross-border egg donation, biodesirability and new reproductive subjectivities
on the European fertility market’ (2015) 22 Gender, Place &
Culture 107.
[51] R Holliday,
D Bell, O Cheung, M Jones and E Probyn ‘Brief Encounters: Assembling
cosmetic surgery tourism’ (2015) 124
Social Science and Medicine
298.
[52] L Culley N Hudson, E
Blyth, W Norton, A Pacey and F Rapport, ‘‘What are you going to do,
confiscate their passports?’
Professional perspectives on cross-border
reproductive travel’ (2013) 31 Journal of Reproductive and Infant
Psychology 46.
[53]
http://www.hfea.gov.uk/fertility-clinics-treatment-abroad.html
[54]
Bearing in mind that some issues, such as male genetic parentage in surrogacy,
are still contested at judicial level, making any
clear advice
impossible.
[55] L Culley N
Hudson, E Blyth, W Norton, A Pacey and F Rapport, ‘‘What are you
going to do, confiscate their passports?’
Professional perspectives on
cross-border reproductive travel’ (2013) 31 Journal of Reproductive and
Infant Psychology 46.
[56] J
Millbank, ‘Responsive regulation of cross-border assisted
reproduction’ (2015) 23 Journal of Law and Medicine
346.
[57] F Shenfield, J de
Mouzon, G Pennings, AP Ferraretti, A Nyboe-Andersen, G de Wert, V Goossens and
the ESHRE Taskforce on Cross Border
Reproductive Care ‘Cross border
reproductive care in six European countries’ (2010) 25 Human
Reproduction 1361, 1626.
[58]
K Hammarberg, M Stafford-Bell and S Everingham, “Intended Parents’
Motivations and Information and Support Needs When
Seeking Extraterritorial
Compensated Surrogacy’ (2015) 31 Reproductive Biomedicine Online
689, 694.
[59] See above note
26. The Guidelines are currently under review. The 2015 public consultation
draft continues, but somewhat clarifies,
the prohibition on providing or
assisting with IVF as part of a paid surrogacy arrangement, ‘Clinics and
clinicians must not
practice, promote or recommend commercial surrogacy, nor
enter into contractual arrangements with commercial surrogacy providers’:
NHMRC, Draft Ethical Guidelines on the Use of Assisted Reproductive
Technology in Clinical Practice and Research: Public Consultation (2015) cl
8.7.1
<http://consultations.nhmrc.gov.au/files/consultations/drafts/artdraftethicalguidelines150722.pdf>
.
[60]
Project roundtable; February 2016, parliamentary inquiry roundtable January
2015.
[61] GKD Crozier and D
Martin, ‘How to address the ethics of reproductive travel to developing
countries: A comparison of national
self-sufficiency and regulated market
approaches’ (2012) 12 Developing World Bioethics
45.
[62] EJ Sobo, E Herlihy
and M Bicker, ‘Selling medical travel to US patient-consumers: the
cultural appeal of website marketing
messages’ (2011) 18 Anthropology
& Medicine 119.
[63] N
Hudson and L Culley, ‘‘The bloke can be a bit hazy about
what’s going on’: men and cross-border reproductive
treatment’
(2013) 27 Reproductive Biomedicine Online
253.
[64] W Van Hoof, V Provoost,
and G Pennings ‘Reflections of Dutch patients on IVF treatment in Belgium:
a qualitative analysis of
internet forums’ (2013) 28 Human
Reproduction 1013, 1021.
[65]
Ibid, 1021.
[66] In tandem
researchers based in destination countries are addressing the experiences of
women who become patients in order to service
the fertility industry. Egg donors
and surrogate mothers are assuming the risks, discomforts and inconveniences of
fertility treatment
and/or pregnancy for the benefit of others. Egg donors and
surrogates should have the same rights to give informed consent to treatment
as
any other patients. This means that they should not be paternalistically
prevented from agreeing to act as an egg donor or a surrogate,
but it also means
that they are entitled to make decisions about their medical care in the same
way as any other patient: S Rudrappa
and C Collins ‘Altruistic Agencies
and Compassionate Consumers: Moral Framing of Transnational Surrogacy’
(2015) 29 Gender and Society 937; M Tanderup et al, “Informed
Consent in Medical Decision-Making in Commercial Gestational Surrogacy: A Mixed
Methods Study
in New Delhi, India” (2105) 94 Acta Obstet Gynecol Scand
465.
[67] For a detailed
discussion of how people in our study using donated gametes responded to the
possibility of disability see Mykitiuk
and Karpin (forthcoming) Fit or Fitting
in ....Continuum.
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