The Regulation of In-Vitro Fertilisation: Social Norms and Discrimination
Author: |
Deborah Porter
Health Department of Western Australia
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Issue: |
Volume 4, Number 3 (September 1997)
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Introduction
- Medical technology, in an effort to overcome the consequences of infertility,
has developed various methods which aim to facilitate
conception. One of
these methods is in-vitro fertilisation [IVF].
- IVF requires the fertilisation of gametes extra corporeal followed by
the transfer or replacement of the resulting embryo into the
womb. That
is, an egg is removed from the body of a woman, fertilised outside the
body, and then introduced into the uterus of a
woman with the aim of
facilitating
pregnancy.
- The possibility of the exploitation of those seeking such services,
or of treatment being rendered by unqualified persons, makes regulation
of reproductive technology necessary.[1]
- Regulation has tended to focus on the issue of 'access' to IVF. Generally
regulation is achieved by the establishment of criteria
which an applicant
must meet in order to secure access to IVF. It is suggested that, in Western
Australia, there are two significant
problems with the criteria currently
used.
- Firstly, the criteria is based on social norms, resulting in the enforcement
of those norms on a person seeking access to IVF. Where
those social norms
are not met, access to IVF will be denied. Secondly, the criteria is
discriminatory.
While it may be necessary
to regulate IVF,[2]
it is inappropriate for regulation to be based on social norms or to be
discriminatory.
- It is suggested that a new approach must be adopted, and would be more
appropriately based on considerations regarding the welfare
of the child
potentially born as a result of IVF.
Enforcement of Social Norms
- Attempts to regulate IVF inevitably meet the inherent 'difficulty of
balancing the respect for the autonomous decision-making of individual
participants with the need for regulation of the scientific [reproductive
technology] industry.'[3]
- It has been suggested that infertility is not considered a medical issue,
but rather a 'social fact based on marital and maternity
norms in our
society.'[4]
In the context of access to IVF, we see the reinforcement of -
restrictive gender norms, specifically that the reproductive role is
intrinsic to (married) women's personality and psychological
well-being.
The medical profession assumes motherhood and the maternal instinct to
be central to women's lives, making it normal
(healthy) for women to give
birth and mother and deviant (sick) for them not to do so.[5]
Succinctly stated '[g]ender norms specify that women should marry and
that married women should have children'.[6]
In addition social norms maintain that only married women should have children.
Accordingly, single women and lesbian couples should
not have children.
- In 1991 the Western Australian legislature enacted the Human Reproductive
Technology Act 1991 (WA) [ HRTA]. In doing so it incorporated these social
norms as an integral element in the regulation of access to IVF.
- Section 23 of the HRTA states:
An in vitro fertilisation procedure may be carried out where -
(a) it would be likely to benefit -
(i) persons who, as a couple, are infertile; or
(ii) a couple whose child would otherwise be likely to be affected by
a genetic abnormality or disease;
......
(c) the persons seeking to be treated as members of a couple are -
(i) married to each other; or
(ii) are co-habiting in a heterosexual relationship as husband and wife
and have done so for periods aggregating at least 5 years,
during the
immediately
preceding 6 years;
......
- Section 23 clearly contemplates only 'couples' accessing IVF technology.
It expressly limits access to IVF to couples that are either married
or
are, and have been for the specified period, in a heterosexual de facto
relationship. Those not meeting this criteria, including
single women and
lesbian couples, are clearly precluded from accessing IVF.
Discrimination
- The HRTA also discriminates against women on the ground of marital status.
This can be demonstrated by consideration of the Sex Discrimination Act
1984 (Cth)[7] [SDA].
- The Objects of the SDA, found in section 3, state that the SDA was enacted
to, inter alia, 'eliminate, so far as is possible, discrimination against
persons on the grounds
of sex, marital status...'.
- Section 22(1) provides:
It is unlawful for a person who, whether for payment or not, provides
goods or services, or makes facilities available, to discriminate
against
another person on the ground of the other person's sex, marital status
........
(a) by refusing to provide the other person with those goods or services
or to make those facilities available to the other person;
- Section 6(1)(a) of the SDA specifies, inter alia, that a person discriminates
against another person on the ground of the marital status of the aggrieved
person if, by reason of the marital status of the aggrieved person the
discriminator treats the aggrieved person less favourably
than, in circumstances
that are the same or are not materially different, the discriminator treats
or would treat a person of a different
marital status.
- Section 4 defines marital status to include the status or condition
or being single, married or a de facto spouse. IVF is clearly a 'service'
within the meaning of section 22(1)(a) SDA.
- As previously discussed, section 23(c) HRTA restricts access to IVF
treatment to a woman who is married or in a de facto relationship (for
the specified period of time).
The effect of this restriction is to provide
less favourable treatment to a single woman or a woman co-habiting in a
lesbian relationship
than to a married woman or a woman in the requisite
heterosexual de facto relationship. Therefore, section 23(c) HRTA, by virtue
of s6(1)(a) SDA, is discriminatory on the ground of marital status.
- This contention is supported by the case of Pearce v South Australia
Health Commission and Others.[8] Pearce
was a single woman who desired to participate in a South Australian IVF
program. Section 13 of the Reproductive Technology
Act 1988 (SA) [RTA]
specifies, similarly to the HRTA, that IVF procedures are only available
for the benefit of married couples (married
couples defined to include
those co-habiting as husband and wife for a specified period). The administrator
of the relevant IVF program
declined to treat Pearce on the basis of section
13 RTA.
- Pearce sought a declaration that to the extent section 13 RTA restricted
the application of artificial fertilisation procedures except
for the benefit
of 'married couples', section 13 was inconsistent with the provisions of
the SDA and therefore invalid by virtue
of the operation of section 109
of the Constitution Act 1901 (Cth).
- A written statement of the facts was agreed by the parties, and the
case was heard by the Full Court of the Supreme Court of South
Australia
with the consent of the parties.
- Williams J examined section 13 RTA in light of section 22 SDA and concluded
that 'a person in the position of the plaintiff is treated
less favourably
under the Reproductive Technology Act than "a person of a different
marital status". This is the very situation
which is prohibited by
s22(1) [SDA] ....'.[9]
- By virtue of section 109 of the Commonwealth Constitution section 13
of the RTA was rendered invalid. The Court unanimously made the declaration
requested by Pearce.
- Similarly in Victoria the Human Rights and Equal Opportunity Commission
[the Commission] recently heard a case involving three women
in de facto
relationships who alleged they were treated less favourably than married
persons when they were refused IVF treatment
because they were not
married.[10]
- The relevant Victorian legislation, the Infertility (Medical Procedures)
Act 1984, restricted access to IVF treatment to married women (in this
case not inclusive of a woman co-habiting in a heterosexual de facto
relationship).
- The jurisdiction of the Commission, being an administrative body, was
limited to inquiring into the existence of discriminatory conduct
rendered
unlawful by the SDA.
- In the reasons for the decision of the Inquiry Commissioner, Ms Kohl
stated:
Having regard to the objects of the Act (see s.3(b)) and a women's
(sic) right to control her own body, a woman's marital status should
not
determine when and if she is able to receive the medical treatment she
seeks. Marital status has no relevance to the type of
medical treatment
which should be available to women and it should not be a bar to obtaining
the medical services which are readily
available.[11]
- The Commission found that in each instance of refusal to allow the
complainant's
access to IVF, the respondent's had discriminated
on the ground of marital
status and were consequently liable for damages.
- It is therefore clear that regulation restricting access to IVF to married
women or women in a de facto heterosexual relationship
is discriminatory
on the ground of marital status.
A New Approach
- A new approach to the regulation of access to IVF could be based on
considerations of the welfare of the child potentially born as
a result
of the IVF.
- The concept of the welfare of the child was espoused by the Reproductive
Technology Working Party of Western Australia [the Working
Party].[12]
The Working Party stated that IVF 'procedures will not be administered
unless appropriate conditions exist for ensuring as far as
possible the
welfare of children born of such procedures.'[13]
The majority of the Working Party went on to state '[t]he right to access
to identifying information about biological origins is
the absolute basis
of this principle'.[14]
- An alternative approach to the requirements of the welfare of the child
can be found in the method adopted by the South Australian
Council on
Reproductive
Technology [the Council].[15]
- The Council require that the basic safety of the child born of reproductive
technology is not compromised. The Council require those
seeking access
to reproductive technology to swear a statutory declaration in order for
their eligibility to be determined.
- The statutory declaration, briefly stated, must reveal whether the applicant
has an outstanding term of imprisonment, a prior conviction
for a sexual
offence involving a child or involving violence or has had a child permanently
removed from their guardianship other
than by adoption. If the latter is
the case, the applicant must undergo an assessment regarding their parenting
skills.[16]
- The Council claims that the statutory declaration is -
not in the nature of a "character test" or an assessment
of parenting ability, but rather a method of assuring that the
basic safety
of children born of reproductive technology is not compromised.[17]
- The adoption of either of these approaches to the regulation of access
to IVF would result in any woman, regardless of marital status,
being
potentially
able to meet the criteria for access to IVF.
- However, the considerations relevant to the issue of the welfare of
the child must be clearly specified. Failing this there is a danger
of
construction otherwise than as intended.
- For example, it has been argued that a child needs a couple, more
specifically,
a mother and a father for the welfare of that child.
This view was supported
by the Warnock Committee which stated:
as a general rule it is better for children to be born into a two-parent family, with both a father and mother...[18]
- Again support was given to this view by the addition of section 13(5)
to the Human Fertilisation and Embryology Act 1991 (UK), which
states:
a woman shall not be provided with treatment services unless account
has been taken of the welfare of any child who may be born as
a result
of the treatment (including the need of that child for a father)...[19]
- If regulation of access to IVF were to require consideration of the
welfare of the child in light of these latter interpretations,
the effect
would be the same as that which exists. That is, it would result in the
enforcement of social norms and discriminate against
women on the ground
of marital status.
- The consideration of the welfare of the child is best achieved by either
limited regulation which acknowledges the right of the child
to know of
his or her biological origin, or the assurance of the basic safety of the
child potentially born as a result of the IVF,
or both.
Conclusion
- The current status of regulation of access to IVF is inappropriate because
it results in the enforcement of social norms and discrimination
against
women on the ground of marital status.
- It is time for a new approach, and this could focus on considerations
of the welfare of the child. However, such an approach could
be used as
a tool to control a woman's reproductive potential in the context of social
norms and discrimination. Therefore a new
regulatory approach must be carefully
considered and adopted, with clarity as to the considerations to be made
pursuant to that regulation.
- Most importantly, new regulation must promote equal access to IVF to
all women, or at least those otherwise unable to reproduce, who
are desirous
of having a child.
Notes
[1] Knoppers, B and Sloss E 'Recent
Developments: Legislative Reforms in Reproductive Technology' (1986)18
Ottawa LR, @ 667.
[2] It is questionable whether there
needs to be regulation on access to HRT at all. However, this issue is
outside the scope of this
paper.
[3] Supra n1, @ 666.
[4] Roach, Sharon, New Reproductive
Technology - Women as Guinea Pigs?, Legal Service Bulletin, Vol 13, No.4
August 1988 @ 164.
[5] Ibid, @ 164.
[6] Schur, Edwin M, Labelling Women
Deviant: Gender, Stigma and Social Control (New York: Random House, 1984).
[7] The Equal Opportunity Act 1984
(WA) has equivalent provisions.
[8] Pearce v South Australian Health
Commission and Others (1966). SA SC (Full Court). Unreported BC9604243,
judgement delivered 10 September 1996.
[9] Ibid, @4.
[10] MW, DD, TA and AB v The Royal
Women's Hospital, Freemasons Hospital and the State of Victoria (5
March 1997) Human Rights and Equal Opportunity Commission (Ms Antonia Kohl).
No.H96/26, 96/33, 96/48.
[11] Ibid, @27.
[12] Report to the Minister for Health
for Western Australia from the Reproductive Technology Working Party (Perth:
Health Department
of Western Australia, August, 1988).
[13] Ibid.
[14] Ibid.
[15] SA Council on Reproductive Technology
Press Release (per Rev Dr Andrew Dutney - Chairman) 'Requirement for Statutory
Declarations
for Eligibility for Reproductive Technology' dated February
1997.
[16] Ibid.
[17] Ibid.
[18] Douglas G, Hebenton B and Thomas
T. 'The Right to Found a Family' (1992) NJL 488, quoting DHSS (UK) (1984)
'Report of the Committee of Inquiry into Human Fertilisation and Embryology'
Cmnd 9314.
[19] Ibid, @ 488.
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